Men With Fibromyalgia Talk About Their Symptoms, Diagnosis, and Dealing With Other People's Reactions
Reviewed by Laura J. Martin, MD
A neurological disorder that causes chronic pain and fatigue, fibromyalgia strikes mostly women. Of the estimated 5 million adults with fibromyalgia in the U.S., as few as 10% are men. For that reason, the popular perception of it as a women's disease has persisted, even among fellow patients.
"When I first went to a support group meeting, it was all women," says Wold, who is now on the board of the National Fibromyalgia Association - and the only male board member with the disease. "Some didn't want me there."
A neurologist who Wold consulted wouldn't see him, discounting his diagnosis and accusing him of angling to get disability payments.
"It's a tough deal for a man to have fibromyalgia," says Wold, who is no longer able to work and can only occasionally hit the links or the lanes. "One of my best friends doesn't believe I have it," he says. "His wife, who is a doctor, told him men can't get it, that it is in my head. That kind of hurt."
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